Archive

Posts Tagged ‘jaundice’

would anyone be surprised if I said we’re *still* here?

October 19, 2009 Leave a comment

19/10/2009public171 visits notify me ?

we are. we have not moved anywhere at all yet. 12 days of being packed and ready to drop everything and go. Suppose I can’t really get much sympathy from a load of pregnant women approaching their due dates though haha!!! Well at least one aspect of the last bit of my pregnancy I’m still getting to experience, fabulous.I did ask the nurses what happens next, what happens if a cot doesn’t become available but they were suitably vague, said they’d just keep phoning every day. I’m trying not to worry about it, they seem confident that a cot will appear, but I’m starting to doubt it a little. One must come available at some point I suppose, bah. Trying not to worry about how the wait will affect Ivy, they don’t want to start feeds until her belly has been sorted really, and my poor little chick seems so hungry. Bless her poor poppet! But with each passing day that she’s not being treated, her going home date is going back, yeah I know we don’t have a ‘going home’ date as such, but it’s still going to delay things. So much for aiming for her due date, it seems really unlikely we’ll be home by the 28th its less than 10 days! Boo.

Ivy is still in ICU, though she has ditched her antibiotics now! Hooray! infection 2 cleared, well done poppet! Not really much to say further than that.

Just this interminable bloody waiting! Starting to send me bonkers I think.

pixiejoyou!
Updated 19/10/2009

Aw bless you Karen!!!

Yeah I must admit to being a teency bit jealous of all those lovely ladies getting to take their babies home when 9 and a half weeks in I still have to ask permission to get a cuddle and don’t get to every day 馃槮 Aaah our times will come!!! Waiting sucks!

Jo x

pixiejoyou!
Updated 19/10/2009

So much waiting with these babies!!! Hope the next couple of weeks goes quickly for you Antonella!

Until the babies and the cuddles come, chocolate, lots and lots of chocolate!! No point dieting before Xmas after all!! 馃檪

Jo x

pixiejoyou!
Updated 21 hours ago

Heard today they’re going to start giving Ivy 0.5mil of milk every 6 hours; more of a tease than food really, bless her! But it’s a start at least 馃檪

Antonella, there are crisps if you prefer! 馃槈 hee!

Jo, you’re right it is a long time, haven’t been able to do a proper shop for a fortnight just in case – amazing how buying little bits to last a couple of days costs so much more! I was thinking of just going to Bristol and plonking my big, fat, post pregnancy bottom down the moment anyone moves an inch to bagsy the space for Ivy. But I know that really all the cots are being taken by babies with more urgent problems and I’d feel awful for them if I did that! So indeed fingers crossed for a quick recovery for some gorgeous little mite to go home with their mum!!! 馃榾

Hope you’re all well lovelies xxxx

Jo x


2 months old!

October 15, 2009 Leave a comment

15/10/2009public194 visits notify me ?

Ivy is 2 whole months old today! She’s been weighed and has reached a grand 2lb 13! So officially more than violet did when she was born, which is sort of a milestone in itself 馃檪 and considering she’s been nil by mouth for a week, and while back on tpn no fats with it cos of all the antibiotics and blood products! Her infection markers have come all the way down to 7 so nearly clear of this bug and all ready for her travels. There was briefly a cot yesterday, but it got filled quickly. So they’re still phoning every few hours. I suppose i’ve spent most of the year expecting to spend october poised and ready to get to hospital quickly, with bags packed and babysitters on stand-by. So I shouldn’t complain too much, we’ve been assured they wont keep us in bristol long as the demand for cots is so high. Fingers crossed! Anyway I hope all you lovely ladies are keeping well! Thanks for all your lovely comments to my previous journals, wish I had more time to reply to you all, y’all rock! Xxx

originally posted on babycentre community board; x-posted to www.handprints.org.uk/pixiejos-previous-blogs.html

See previous titles

October 14, 2009 Leave a comment

14/10/2009public133 visits notify me ?

Yup we’re still in sunny Cornwall, for the time being.So thought I’d pop up here and say hi!

After all I was saying about giving blood the other day; I had blood taken yesterday by one of the neonatal drs, they did it with a butterfly thing instead of the usual vacuum things the midwives use. Sorry that’s less than clear huh? And for the first time ever I came over all wooshy as it was being done! I’ve never fainted or anything when having blood taken before, even after Violet was born when they took my blood every few hours cos of the pre-eclampsia!! Nuts! Maybe it was the watching it go down the tube…who knows!

Things are tootling along here, still not sure what’s happening re: Bristol. Ivy’s infection markers have come down, everything else seems stable, we got to have a cuddle last night too! They’ve had to put another long line in, poor chick, they had such trouble getting one in her arm, and she had cannulas in both legs at the time, so sh’es had to have it through a vein in her scalp. It sounds much worse than it is to be honest! At least in her scalp she can still swing her arms about, which she seems to enjoy, and she can’t pull on it, which has to be uncomfortable. And if the infection passes, which it looks like it is, then she can go back onto milk and it can come out again.

It’s been a tough week, hopefully we’re past the worst now. Glad that today, so far, there’s not been any phone calls. Of course it’s lovely that our families take an interest in it all, bless them. I try and keep them updated by text and, sadly, by facebook *ahem* and naturally if there was any important news I’d phone them all. But they all phone, inevitably all on the same day, and it’s tiring. I feel like I need to adjust everything I say according to how they’re taking it; when I said to my dad’s wife today that we’re still here, she started gushing about how wonderful news that was, hooray how fabulous, etc. It thoroughly confused me, I don’t know if she picked me up wrong, we are still going to Bristol, just not today….. And when I told gran that Ivy had another infection the other day she came rushing over and hovered at me. It’s tough, I don’t want to worry family unnecessarily, but I don’t want them thinking everything is just shiny either! When Violet was in hospital it was easier to let everyone believe everything was dandy, and largely everything was mainly ok, but I feel I need them to be aware of how much more delicate Ivy is. Even if just to stop them asking me when she’s coming home, which I imagine is as annoying as the questions all you pregnant ladies get ‘when is that baby coming?’ ‘haven’t you had that baby yet?’ I remember my mum getting really annoyed and telling people that in fact yes, the baby was here and she was pregnant again already. And offering people photos to save them staring…..Anyway, doesn’t really work for me. Must think of something witty.

Also I don’t want them thinking all is well cos they keep buying Ivy things, and I find it really hard to take. I’m still scared she’s not here to stay, I can’t imagine bringing her home, every time I start enjoying her something knocks us back. I have a few photos about but everything else gets put away, I don’t want to see these reminders everywhere that my baby isnt with me, even when it’s going well really. It’s lovely that they’re excited about having a new addition to the family, but in many ways I’m trying to treat it like I’m still pregnant, but the fact that she’s not home doesn’t have any impact on them, we have to live in it. I wish they’d give us the space to come to them to tell them things rather than phoning demanding all the time, I don’t have the energy for it. And the recurrence of PMT and the witch does not help any!

Wow that all turned out to be much more miserable than I had intended! Sorry! Ark at me all maudlin, when today actually things are going well. Meh. Must tidy the kitchen and phone up to see how my little chick is getting on, hooray! 馃榾

pixiejoyou!
Updated 14/10/2009

Bless you lovely! I should really only post journals after I’ve visited Ivy, when my sun is shining 馃榾 ((((big hugs)))) Thanks for your lovely message chick!

There’s also an element of excitement to the not being able to imagine her coming home though, if that makes any sense?! I know her coming home is going to change everything about all of our lives unrecognisably and I just can’t imagine it, but I am looking forward to finding out. 馃檪 And yeah in my more maudlin moments like earlier, I can’t imagine her coming home and I don’t want to try and picture it just in case she doesn’t. But I try not to think about it too much, to be honest I couldn’t picture Violet coming home either, and she’s been here for 2 years and now I can’t imagine there ever being a time when she was not here!!

Sometimes it is easier to give people the answer they want to hear when they ask how things are isnt it?! Bless you you’ve not had an easy pregnancy, I’m sure you must be sick to the back teeth of people saying stupid things like ‘oh you’ll be blooming soon’聽 so I’ll refrain 馃檪 Take care lovely xxxx

Jo x

originally posted on babycentre community board; x-posted to www.handprints.org.uk/pixiejos-previous-blogs.html

We’re STILL here.

October 12, 2009 Leave a comment

12/10/2009public219 visits notify me ?

Humpf. There hasn’t been a cot, though in fairness ivy has still been poorly and the consultant didn’t want to transfer her until she’s stable. When I last posted her blood sugar was really high, it then dropped far too low and didn’t recover even after various dextrose top ups, poor chick. Seems to be fine and stable now. It was a urine infection this time, the bacteria bein the most common type to infect premmies apparently so they can narrow down the amount of antibiotics they’re giving her. Still updating for meningitis same as last time, they don’t want to do a lumbar puncture as they’re only just got her clotting sorted, so it’s a just in case at least. She seems perkier and obviously hungry which is good. It took her longer to seem perky last time, so hopefully that is her getting better. Also me and dh have been asked to have blood tests so they can rule stuff out and they wont tell me over the phone what the test is for… Hmmm probably not nearly as exciting as it sounds. Anyway, must get on with cooking tea so we can go visiting. As for bristol, who knows? Wednesday they say, perhaps. Not holding my breath though, question is should I go shopping? Don’t want to buy food that we wont get to eat… Feeling a bit bleh.

pixiejoyou!
Updated 12/10/2009

Ha! Forgot posting from a phone means predictive text! Who knew treating and updating used the same keys? 馃檪

Jo x

pixiejoyou!
Updated 12/10/2009

Just back from our evening visit, doesn’t look like we’ll be off anywhere tomorrow either, they want to make sure ivy is more stable so leaving it until wednesday until they start talking to bristol again. So more waiting certainly. I got to have cuddles tonight which was lovely as its been nearly a week since my last cuddle. It would have been lovely but ivy started taking huge breaths and big twitches, not jittering like a fit but twitches. I got to stroke her head while they took blood, it’s truly amazing how quickly they can run the basic tests, less than 10 minutes, all came back clear. Glad the dr was there though, she was explaining the blood tests we have to have. Something to do with enzymes and blood sugar, to further rule out conditions that may be causing ivy’s prolonged jaundice. They can’t use her blood as too much of its not actually hers currently! So not that exciting. Anyway i’m just typing again. Rambling. Starting to get quite depressed, not sad just numb, so in a way doing this from a phone is quite therapeutic. I can only see 3 lines at a time and can’t over think. Just get it out! So, i’m very sorry if i’m boring you all to pieces with my miserable ramblings on! Meh maybe the david attenborough program will take my mind off it a little.

Jo x

originally posted on babycentre community board; x-posted to www.handprints.org.uk/pixiejos-previous-blogs.html


Ivy is off to bristol

October 7, 2009 Leave a comment

7/10/2009public347 visits notify me ?

Well not quite yet, but as soon as a non-emergency bed and the fancy ambulance team are ready then she’s off 馃槮 could be tomorrow, more likely a few days though. She has to have investigative tests to see why her belly keeps blowing up. Hopefully it’ll be something that will self correct and we’ll only be there a few days, but there’s a chance she could need surgery, hard to know when they don’t know what’s causing it! Apart from that she’s well, her and the baby in the bed next to her both span 180 degrees today, don’t know how, why or if they discussed it first just to freak the nurse out…. Anyway I must pack violet’s bags ready to go at short notice and get a washing on, thought maybe typing it out would help me digest it.

originally posted on babycentre community board; x-posted to www.handprints.org.uk/pixiejos-previous-blogs.html

All Clear!

October 2, 2009 Leave a comment

2/10/2009public192 visits notify me ?

Yesterday flew past at 100 miles an hour, but it was a good day!

Ivy finally made it over to Nuclear Science and got her HIDA scan, she looked really rather cosy in the travel incubator bless! And as you may have guessed it has come back all clear! Hooray! So today she’s back onto that king’s regime of vitamins to clear the jaundice out, and now she’s no longer fed TPN it should clear quickly too 馃檪

While I was in visiting during the day (which only happens on DH’s days off) the eye dr was doing the rounds. So I got to hold her while she was having her retinas looked at; and one the other lovely mummys was good enough to keep me distracted so I didn’t look, the dr told me not too as they have to pin the poor little poppet’s eyes open! Not for the faint hearted. He’s happy with the way the blood vessels are growing, so that too is all clear!

And also as she’s passed 35 weeks now (36 actually!) the parameters have changed on the monitors, so she had been in a little oxygen to keep her sats up and yesterday had it have it through nasal cannulas which she hated! Last night she went back into air, cannulas gone from the nose; and as all the antibiotics have been finished the cannula is out of her foot too!

I had my post natal check, which apart from relaying the whole story to my Dr and having a bit of laugh, was really rather dull.

Violet had her first speech and language session. Well, she played in the nursery and us parents got talked through various tips on how to encourage our reluctant chatterboxes. It was really lovely to be with other parents and not have to explain why Violet is like she is, as we’re all in the position!

And we got a tumble dryer 馃檪 nice, warm, dry washing instead of a kitchen constantly smelling of damp hooray!!!

originally posted on babycentre community board; x-posted to www.handprints.org.uk/pixiejos-previous-blogs.html

For the last 56 hours and counting

September 24, 2009 Leave a comment

pixiejoyou!

Posted 24/9/09

Ivy has been breathing all by herself!

They’re confident enough in her ability to breathe that they’ve taken the CPAP machine away altogether! And today she should finish her antibiotics – I never did ask what type of infection she had, I’d rather not know I think!

We would be up the hospital right now, but she’s having a day out off across the hospital to the x-ray department with 2 nurses all to herself. All the investigations that had been paused while she was poorly are starting back up, so today they’ll have a look and see if there is a reason why she’s stopped pooing again (sorry tmi, it’s amazing how babies make you obsessed with these things, I swore it’d not happen to me, but there we go!) And when the antibiotics finish she’ll be back on the phenobarbitone ready for her HIDA scan to see if there’s a reason why she’s jaundiced.

And that’s my hubby back with his new haircut…..hope yuo’re all well lovely ladies! Thank you so much for all your PMA, yuo bunch of stars! love ya all xxxxx

Jo x

pixiejoyou!
Updated 24/09/2009

I am so super excited and proud of her! Can’t believe this time last week she was all sleepy and on CPAP 24 hours a day, not even able to have little bits of time off for ‘nose-breaks’ . Must be her stubborn Scottish blood! 馃檪 She hated that machine so much! I wonder what she’ll choose to pick on now.

I will give her teeny tiny high fives and kisses from yuo all when we visit later! woooo! xxx

Jo x

originally posted on babycentre community board; x-posted to www.handprints.org.uk/pixiejos-previous-blogs.html