Archive for the ‘violet’ Category

The ball is rolling….

October 20, 2010 2 comments

Meeting two for Violet’s statementing done and dusted. All boxes sufficiently ticked, all relevant peoples notifed. I feel a bit odd about the whole thing now.

We’ve been left with a load of booklets, there are so many there is even a booklet to explain what all the others are for. Seriously. There’s a folder, with all the important details in it, like a giant, more detailed version of the red book everyone brings home with their newborn babies. It’s where we get to write down the myriad of people we have to deal with now, so hopefully we’ll at least remember their names. It has helpful sections we can filled in named things like ‘stuff you don’t want to have to repeat at every meeting’ and ‘things your child likes and things they don’t’ and most impressively ‘when you’re visiting us please….. and please do not….’
Fingers crossed that will save us some of the repetition we’ve dealt with in the last 3 years with all the various departments in hospital. I mean I’ve never blamed them for not wanting to read Violet’s whole medical notes, they’re huge! (Though not as big as Ivy’s, hers have been split into two folders that I swear weigh more than she does even now!) But even so I do feel like a stuck record, I can recite a potted medical history for each of my kids in less than a minute, just from the amount of practice.

Anyway. On the one hand I’m really chuffed that we’ve got people on our side, that we’ve got people on Violet’s side. That we’ve done all we can do to try and ensure that she won’t get totally frustrated and school hating before reception year is over. She has enough battles to fight already.

But yet still there’s this little voice inside that is so sad. I’m sad for her, that she’s not going to get the same normal primary school experience I remember, or that most of her friends will have. Yeah I know she wont know differently, and that it may not be forever, but still. And I am sad for me too, that every part of my parenting experience so far has involved booklets and permission forms, has involved lots of professionals and websites, has involved so many of our choices being taken away.

That is the ball rolling though. Now for the waiting.

Categories: violet Tags: , ,

TV sucks, let’s listen to some tunes!

October 18, 2010 Leave a comment

It always makes the day better doesn’t it? I used to have music on all the time, before children and I must admit I do dislike the tv quite intensely. Don’t get me wrong there are many programs that I really enjoy watching, and cbeebies/milkshake have helped me maintain a level of sanity over the last 3 years, but I miss listening to music. I love with music that you can listen, appreciate, even join in with it and still read, study, or converse.

Perhaps it’s because I grew up in a house with many people and rarely if ever got a say in what got put on the tv, or perhaps its the time I spent since then in bedsits with no tv at all, but many a day I wish we didn’t have one now. I feel it sucks all the motivation out of the room, so often left in the corner yabbering away to itself with its constant stream of depressing news.

How many times have we all lost an hour watching a program we don’t even like? How many things do we feel we never have the time to do? How many phone calls, games,and hobbies slide by the wayside because the tv is on? I appreciate how hard it is not putting the box on. It’s hard to think of things to do, to keep everyone entertained when they’ve been used to the tv doing it for them.

It’s worth it for days like today. The girls have been much better behaved, perhaps they feel like they’re not competing for our attention with the big black box in the corner? They’ve played so much more nicely with their toys, and with each other, they’ve enjoyed the singing and the dancing about. Us grown ups too, the tunes coming on you haven’t heard for years and the memories that they bring, how often does the tv make you feel like that?

Categories: ivy, violet Tags: , ,

Many new acronyms and a new sofa!

October 15, 2010 Leave a comment

Well a new sofa to us anyway! Out of our current three-piece suite two seats have utterly collapsed, beyond all rescuing with hidden cushions or bits of mdf. It is done. And while I am sort of laughing inside at the lottery of who gets the crap seats, as naturally they are the popular ones, we have had to get a new second hand sofa. Until then it will be like living in Takeshi’s Castle!

On a more serious note, this morning was my meeting with Violet’s SENCO at nursery. She showed me her ‘learning journey’ and their own notes, as well as explaining many of the acronyms, and me oh my there are tons of them!! In her opinion Violet is likely to get a statement as she needs one to one attention or else doesn’t understand what is going on, but she will need to be watched and assessed a few times before any decision will be made. In the meantime she has an Individual Learning Plan in place for nursery. It has set many balls in motion though, she has referred Violet onto the district SENCO, on the basis that the more professional involved the more likely we are to be able to help Violet through school. She also regularly works with the local Speech and Language Therapy team, including the same therapist that Violet was working with this time last year, so she will arrange for her to assess Violet at nursery. She’s also going to as if we can have a Makaton sign pocket book from them, which would be really helpful!

So from two initial meetings the same people at the top of the tree are going to be contacted, hopefully it’ll all converge in a nice helpful manner with a nice simple statement for Violet all done and dusted and ready for school. I suspect it wont be nearly that simple, but at least I know who to nag now!

Categories: violet Tags: , ,

a bit bloody complicated for me!

October 12, 2010 1 comment

I think I am doing really rather well today, I think.

Generally speaking I would rather pull out clumps of my own hair than phone anyone, especially anyone official. I do not know what terrible things I think will happen if I dare pick the phone up, but terrible things will occur! I have phoned the tax office, the hospital, my health visitor, a friend, and it’s only 3pm!

Similarly I will avoid baby groups and suchlike for fear of um… well for fear of other parents I suppose. Confession time – Ivy has *never* been to the local clinic, our health visitor has always come here as she was a premmie or she’s been weighed at the hospital. So today I have managed to get my sorry backside to the weighing clinic to find out how tubby Ivy now is, only to find I was the only parent there anyway. All that worry for nothing! I feel strangely let down. On the upside this means I got to speak to our health visitor about getting Violet’s statement in place for school, and now suddenly, she’s sorting the whole thing! Wasn’t what I intended when I went in, but hooray!!! As it turns out most of the phone calls I made today were related to this statementing, and all of them have required a referral from our health visitor anyway, so pretty much the whole sorting-out-school thing has been taken out of my hands. Superb!

And further to this I have also sorted a meeting with Violet’s nursery school’s SENCO too, so we can discuss her needs and set targets. Apparently. I am now going to survey special needs teachers I know to see if they can translate these things for me. I feel I am doing a lot of parroting and not a lot of understanding.

But for the moment, tea and biscuits are on the agenda.

Blogging is dangerous!

October 11, 2010 Leave a comment

Here I am setting myself up with my British Mummy Bloggers badges and stuff, to hear screaming coming from the kitchen, my 3 year old hairing through crying as she doesn’t have the words to tell me what’s happened, the wailing from the back door. That’s right 1year old bambini tumbled out the back door face first onto concrete. eeeeek!!!
I had barely taken my eyes off them.
Luckily Ivy seems to be made of rubber, and but for a little red rudolf nose seems completely fine.

I feel bloody awful though, my poor chicks!! Between Ivy’s grazed red nose and Violet’s big red lump on her head from where she fell on the way home from school they’re looking properly in the wars. I am locking them in today I reckon……they will both get a bag of buttons each though, and tons of cuddles. Poor babies.

Categories: ivy, violet Tags: , ,

sleepy tired sunday

October 10, 2010 Leave a comment

after a week of being got up at 5am or before I suppose a lie in today would really have been too much to hope for, however girly-woos are on fine form this morning. I was woken to the sound of each of them saying ‘Ivy’ at each other at about 6am, very cute until I realised it was still dark. bah.

Since being downstairs, Ivy has managed to tie herself into her own toy bin (an ex laundry basket made of mesh) while crying ‘oh dear, oh dear’. She has since spent the morning making a mockery of our childproofing, we are rapidly running out of high shelves to rehome things……
Violet has been doing her F1 car impression, and has run away from her breakfast, and is currently trying to eat a lampshade.

Sundays, at least we don’t have to do…..oh no hang on we’re going out this morning! I must get dressed!!!

just quickly, so I remember

October 10, 2010 Leave a comment

for I no longer have concentration span or ability to remember anything.

We have visited Ivy’s boyfriend Stanley, and walked along the beach. Twas fabulous, I shall stop swearing at weathermen for being wrong about the weather change, a lovely day today!
Anyway, we were discussing Violet’s hearing and communication issues, and the inevitable lack of understanding she has because she can’t hear, and have been thoroughly bullied by Sara into taking the poor poppet back to the drs and looking into getting her ‘statemented’ whatever that means. Hopefully that will put wheels in motion so that when she starts school this time next year there will be appropriate support for the teachers to be able to teach her. Like an assistant who knows makaton.
I also should try and expand my makaton further than what Justin shows me on Something Special too….or at least watch the episodes more than once so perhaps some of it will stick.

Ah who am I kidding, I’m writing this to remind me to do these things, how am I ever going to learn a new language?? I think my tiny brain may explode.

Categories: violet Tags: ,